A 5-year-old Kentucky girl with a rare disease was refused by two airlines to board a plane from Canada to China for her treatment, saying she was too sick to fly. The girl was to receive stem cell treatments for a rare fatal disease at a Beijing hospital.

After being treated at a Vancouver hospital for seizures, Miranda Goranflo and her daughter Hailey were forced to fly home to Shepherdsville, KY, when the airlines, Air China and Air Canada, decided during a layover in Vancouver, British Columbia, that she was not fit to fly for 11-hour trip.

Hailey's parents raised more than $75,000 and planned to take her to China for an experimental stem cell treatment that is not offered in the U.S. The girl and her 3-year-old brother Carter suffer from a rare condition called Late Infantile Batten Disease. There is no cure for it, and the disease can be fatal as it takes a toll on the mind and body of the children.

Over time, affected children suffer mental impairment, worsening seizures, and progressive loss of sight and motor skills. Children become totally disabled and eventually die.

Batten Disease is not contagious nor, at this time, preventable. To date it has always been fatal.

Hailey can no longer walk, talk or eat without a feeding tube.

According to the National Institute of Neurological Disorders and Stroke, Batten Disease is relatively rare and occurs in an estimated two to four of every 100,000 live births in the United States.